Table 3 Scoring of psychometric measures of transition-readiness tools by Terwee criteria
Tool | Content validity | Internal consistency | Construct validity | Reproducibility | Responsiveness | Floor & ceiling effects | Interpretability | ||
|---|---|---|---|---|---|---|---|---|---|
Factor analysis | Cronbach’s alpha | Agreement | Reliability | ||||||
TRAQ [4] | + | +FA | +: total (0.93), domain 1 (0.92), domain 2 (0.82) | +: 100% (age, gender, disease type) | 0 | 0 | 0 | 0 | ? + mean/SD 0 MIC |
?sample size | |||||||||
UNC TRxANSITION [17] | + | 0 | 0-? used PC | 0: inferred from development | + | ? Small cohort (n = 35) | 0 | 0 | 0 |
Self-management skills assessment guide [16] | – | 0 | +: 0.93 | +: 100% (correlation with independence) | 0 | ? inter-rater PC 0.56 Small cohort (n = 47) | 0 | + | 0 |
SCIS [8] | - | 0 | +: 0.93 | ?: no hypotheses, correlates with age, years since diagnosis | ?: Small cohort (n = 35) | 0 | 0 | 0 | 0 |
Readiness auestionnaire [9] | - | 0 | 0 | +: 100% (caregiver ratings) | 0 | ? inter-rater PC 0.65 Small cohort (n = 36) | 0 | 0 | 0 |
RTQ [10] | - | 0 | +: 0.79-0.94 | +: 86% (responsibility, medication knowledge, self-refilling, family relationship, decreased family involvement, adherence), no correlation with age | 0 | ? inter-rater PC 0.5-0.68 Small cohort (n = 48) | 0 | 0 | 0 |
TRS [2] | - | +FA ?sample size | -: 0.19-0.85 | -: 50% (self-management, age NOT adherence or health outcomes) | 0 | 0 | 0 | + | ? ? mean/SD (age) 0 MIC |
RCBRS [13] | - | 0 | +: 0.85-0.9 | +: 100% (responsibility, self-efficacy, decreased parenting stress) | 0 | ? inter-rater PC 0.33-0.58 | 0 | 0 | ? + mean/SD ? MIC |
McPherson et al. [14] | 0 | 0 | 0 | +: 100% (age, disease severity, gender) | 0 | 0 | 0 | 0 | ? + mean/SC ? MIC |
TRQ [15] | - | 0 | 0 | +: 80% (anxiety, confidence in GP, decreased treatment length, improved with intervention) | 0 | 0 | 0 | 0 | 0 |