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Table 5 Example quotes for each theme

From: Parents’ and healthcare professionals’ perceptions of the use of live video recording in neonatal units: a focus group study

Themes

Focus group

Best interests of the child and improved care

 “It should really always be used in an effort to improve care [...]”, “It should always be in the patient’s interest, I think.”

Parent, Nantes

 “We have children who leave quickly [...] if we have the means to spot this upstream, yes, clearly there is a real benefit, it’s worth it...”

Professional, Rennes

Impact of images on parents

 “I see with my wife; I took several video clips [...] she watched them a lot of times so it’s true that it can create a bond.”

Parent, Rennes

 “It also seems a little anxious to me, actually, we’re not professionals [...] we can see things that worry us when in fact it’s not worrying.”

Parent, Rennes

 “There could be a drift [...], to be watching all the time and then when you’re at home, you should also cut, recharge...”.

Parent, Rennes

Concern for the possible impact on healthcare professionals

 “I put myself in their shoes, maybe I’d feel a little pressure, a little eye above my head to see if I’m doing my job well.”

Parent, Angers

 “If baby is sleeping, we don’t go there... but this can be an opportunity to have a discussion with the mother.”

Professional, Rennes

 “Then we finally forget that the video is there”.

Professional, Galway

Informed consent and guarantee of use

 “In fact, it is rather up to them (the professional) to give their agreement or not”

Parent, Angers

 “there is a need to know where the limits are”

Professional, Rennes

Data protection and privacy

 “You shouldn’t be able to access it anywhere, anyhow either.”

Parent, Rennes

Forensic dimension

 “[...] during a trial for a death, can there not at some point be a lifting of secrecy? A lawyer may be able to negotiate successfully to access the images”

Professional, Galway

 “That’s what scares (me) about video recording, its possible (erroneous) interpretation.”

Professional, Angers

Potentials use: practice improvement, teaching, research

 “For oral problems the video would be useful for filming the feeding, see the breathing-deflutition synchronization”

Professional, Angers

Technical aspect and feasibility

 “if you just had to turn it on, like attaching a sensor. I think it would work.”

Professional, Rennes