Table 2 Participant characteristics
From: Understanding the child-doctor relationship in research participation: a qualitative study
Characteristics | UK data Na (%) | Dutch data Na (%) | Na (%)b |
|---|---|---|---|
Sex | |||
Girl | 18 (62) | 9 (39) | 27 (52) |
Boy | 11 (38) | 14 (61) | 25 (48) |
Age | |||
9,10 years | 1 (3) | 4 (17) | 5 (7) |
11, 12 years | 8 (28) | 6 (26) | 14 (27) |
13, 14 years | 8 (28) | 9 (39) | 17 (33) |
15, 16 years | 4 (14) | 3 (13) | 7 (13) |
17, 18 years | 8 (28) | 1 (4) | 9 (17) |
Disease | |||
Acute diseases (Acute Lymphoblastic Leukemia, brain tumor, Hodgkin’s lymphoma) | 4 (14) | 3 (13) | 7 (13) |
Common chronic diseases (DM1, Crohn’s disease, asthma, arthritis, migraines) | 13 (45) | 7 (30) | 20 (38) |
Rare chronic diseases (peanut allergy, glycogen storage disease, hypophospatic rickets, vasculitis, Lupus, Wegener’s granulomatosis, osteogenesis imperfecta, cystic fibrosis, Grave’s disease, overlap connective tissue disease, tuberous sclerosis complex) | 7 (24) | 8 (35) | 15 (29) |
Other health conditions/syndromes (congenital heart condition, Prader-Willi Syndrome, restricted growth) | 1 (3) | 3 (13) | 4 (8) |
Healthy | 4 (14) | 2 (7) | 6 (12) |
Participants decided to: | |||
Participate | 27 (93) | 19 (83) | 46 (90) |
Not participate | 1 (3) | 3 (13) | 4 (8) |
Withdraw | 1 (3) | 1 (4) | 2 (4) |